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Adult Tongue Tie

My Story Part 1

I recently got my babies’ tongue and lip ties released, and now I’m curious about my own mouth wellness.  This is such a confusing, controversial, in-depth topic. While navigating this murky science, I felt so isolated, stressed, and honestly a little crazy. (You can watch here)

BUT I LEARNED A LOT! 

Well, I couldn’t half-ass the research for my kids. I dropped everything and learned all I could – way more than I would have for myself. When I had my second child I thought, “Ok, we got this. Bring It, midline defect!” Well… I was a bit blindsided three weeks in when things felt eerily similar to my first experience despite having released all of her tethered oral tissue at a much younger age. I was so disappointed but eager to learn. Tuns out, there was a lot more for me to learn, and these two siblings couldn’t be more different. 

Now that the breastmilk is flowing, I’m back at work, and we’re sleeping a bit more, I’m noticing my pain daily. I’m curious. Do I have a tongue tie? Is this why I trip over sounds when I’m talking? Snore when I sleep? Have disgustingly poor posture? Endure chronic shoulder, neck, and back pain despite exercise, myotherapy, and years of chiropractic care?

WE WILL SEE!

Join me while I learn if I have ankyloglossia, what craniosacral therapy feels like, and what the heck is myofunctional therapy (by Skype no less!). I’ll be adding a video and pictures to each post. Should be fun! (and completely painless and free for you, lucky dog)

Follow My Journey

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Mandy Irby
Mandy Irby is a board-certified labor nurse with 13 years of experience supporting survivors of assault and trauma through pregnancy, birth planning, and at their bedside during childbirth and pregnancy loss. Mandy is an international educator through her online, on-demand childbirth ed classes and community exclusively for nurses to shed the shame and powerlessness they feel to change the very system L&D nurses were setup to fail in. She's passionate about shaping the future of nursing to improve childbirth outcomes! As a creative educator, Mandy co-authored Amazon best-seller, Baby Got VBAC.  Many know her through her wildly popular, tongue-in-cheek social media platforms.

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14 Responses

  1. Thank you! No professionals knows anything about this in my country. I am VERY sick with chronic pain (highlevel) and chronic migrain. This gives me Hope!
    Btw, i’m a Midwife (currently to sick to work) 😉

    1. Hi Malene, thank you so much for sharing! UGH I’m so sorry about your pain. Have you tried searching on Facebook for providers or support groups near you? I believe that you probably don’t have any, but there’s a large group of people trying to get help to people just like you! Maybe you’ll connect with someone that can help – at least a place to stay if you decide to travel! That’s awesome that you’re a midwife! Heal quickly so you can keep working!!
      You can also contact me here and tell me what country you’re in. I can put an ask out in the admin groups that I’m in if that helps!
      Thanks for the love!

  2. Hi Mandy! I’m goinh through a very similar experience. My son was diagnosed with a posterior tongue tie which was released when he was 2 weeks old. It made the world of difference for us with nursing, and now 6 months postpartum, I’m finally putting the pieces together that my unguagnised tongue tie might be the underlying issue to so many issues and chronic pain I’ve had most of my life, which my mother has also experienced. I’m getting my tie assessed in 2 days, and hoping it goes well. I was just curious if you’ve made a video about your how your procedure went, and if your insurance did in fact cover the cost? This is all so new and fascinating, and very emotional for me. The only person who understands the pain I’ve been living with is my mom, and it’s so reassuring to know that we aren’t the only ones! I’m really looking forward to hearing your story and if you’ve noticed any improvements so far. Thanks for sharing!

    1. Thank you so much for sharing, Brittney! I’ve got a whole tongue tie playlist, girl! Binge watch away! You’re totally not alone: https://youtu.be/YnEipW08Uzg

      I’m drafting an email to you right now. We need to chat! 🙂 I’ve done a few updates, (latest posted today, https://mandyirby.com/how-to-stretch-after-an-adult-tongue-tie-release-video/ ) and plan to do one more very soon with more Q&As and some before and after pics.

      I just got a check from my dental insurance last week! yaaaaay!! They reimbursed about 75%. Not as much as they originally told me, so I’ll be looking into what happened there, but more than I expected, actually. I was waiting and going to believe it when I saw it….money in the bank, it totally happened. What a relief.

      I hope you feel like you’re part of a community instead of all alone in this, because you are! I also hope you get some relief from your own relief if that’s what you’re looking for!
      Good Luck!

  3. Hi Mandy, I have spent my entire 69 years being sick, many digestive issues from colic as a baby, to nausea and headaches as a child (my mother made be throw up at least 3 days a week by putting her fingers down my throat – that was the only way to get reliief), then IBS and Gerd, now s;leep apnea to name a few things. . I have been going to excellent dentists and functional medicine doctors for years and still no one diagnosed my tongue tie until I finally went to an integrative dentist. I am going through myofunctional therapy now and plan to have the surgery on 8/17. I have been told I will need a device to expand my palate but eventually should not have sleep apnea.. I was wondering how you are feeling now and if you are still snoring. What other therapies are you doing?

  4. You actually make it seem so easy together with
    your presentation but I find this topic to be actually something which I feel I might never understand.
    It seems too complicated and extremely broad for me.
    I am taking a look ahead to your next submit, I will try to get the
    hang of it!

  5. I have to thank you for the efforts you have put in penning this site.
    I really hope to see the same high-grade blog posts by you later
    on as well. In truth, your creative writing abilities has motivated me to get my very own site now ;
    )

  6. Does anyone know what happened to Dimepiece Los Angeles celebrity streetwear brand? I seem to be unable to proceed to the checkout on Dimepiecela site. I’ve read in Elle that the brand was acquired by a UK hedge fund in excess of $50m. I have just bought the Dimepiece Dream Case Mate Tough Phone Cases from Amazon and absolutely love it xox

  7. Hmm is anyone else having problems with the pictures on this blog loading?
    I’m trying to figure out if its a problem on my
    end or if it’s the blog. Any feedback would
    be greatly appreciated.

  8. Hi Mandy,

    First of all, I am so glad I found your journey documented, it is so helpful. I am starting the same process, trying to relieve the migraine/neck pain. I couldn’t find anything on the impact your experienced long term – years later, did it help with the pain? Did it help your sister’s migraines? Would love any feedback you might have so long after the procedure. Thank you and have a nice week :).

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